Community Education Webinars

I AM ALS presents ALS Signal and PaCTD: Patient Centric Tools

I AM ALS is revolutionizing how to cure fatal diseases -- with our sights set squarely on ALS. One pathway to faster treatments and cures is access. Enter ALS Signal, designed as a user-friendly tool which shares information about…

AMX0035 Results: Implications for People with ALS

In this session, Dr. Neil Thakur and Dr. Kuldip Dave from the ALS Association discuss the implications of the CENTAUR trial for the ALS community.

The views and opinions expressed in this webinar do not necessarily reflect the…

Results of the CENTAUR study: a trial of AMX0035 for people with ALS

Dr. Sabrina Paganoni and Dr. Merit Cudkowicz review the results of the CENTAUR trial evaluating AMX0035 in people with ALS.  

ALS - Biosample Collection Efforts to Accelerate Research: Biofluids, Tissues, Cells and Data

ALS Biorepositories have expanded the opportunities for scientific investigation to ALS researchers worldwide. Many types of Biorepositories and related efforts exist to support research and to aid in therapeutic development. The NEALS…

ALS Clinical Research Learning Institutes: Empowering People with ALS to be Research Ambassadors

In this webinar, we will review the background that led to the creation of ALS Clinical Research Learning Institutes, show what these look like, and detail how patients and families can apply to participate. Several graduates of the…

Update #2: Impact of COVID-19 on ALS clinical research

Hosts: Jinsy A. Andrews, MD, MSc, Columbia University Medical Center and Timothy M. Miller, MD, PhD, Washington University (NEALS Co-Chairs)Panelists: Richard Bedlack, MD, PhD, Duke ALS Clinic; Merit Cudkowicz, MD, Sean M. Healey &…

Impact of COVID-19 on ALS clinical research

Hosts: Jinsy A. Andrews, MD, MSc, Columbia University Medical Center and Timothy M. Miller, MD, PhD, Washington University (NEALS Co-Chairs)Panelists: Richard Bedlack, MD, PhD, Duke ALS Clinic; James D. Berry, MD, MPH, Sean M. Healey…

Simplifying the Search: How to Find the Right ALS Clinical Trial for You

Presenter: Timothy Miller, MD, PhD, Washington University in St. LouisThis webinar provides introductory-level instruction on how to search for ALS clinical trials. You will learn what resources to use to find open ALS clinical trials…

Research and Support for Young Caregivers and Families Affected by ALS

Presenter: Melinda Kavanaugh, PhD, MSW, LCSW, University of Wisconsin - MilwaukeeDespite the growing body of research on caregivers in ALS, the most vulnerable and isolated population of caregivers, children and youth caregivers, or…

ROADS to a better ALS outcome measure: the new Rasch-Built Overall ALS Disability Scale (ROADS).

Presenter: Christina Fournier, MD, MSc, Emory UniversityThis webinar will present the rationale for creating a new ALS disability scale, give an overview on the creation and validation of the ROADS, and will discuss advantages of using…