Community Education Webinars

Is the Key to Stopping ALS Being Flushed Down Our Toilets?

Presenters: Richard Bedlack, MD, PhD, Duke ALS Clinic and Katharine Nicholson, MD, Sean M. Healey & AMG Center for ALS at MGH  The gut microbiome is the family of organisms that live inside our GI tracts. It is very clear…

ALS Nutrition App - Cooking Demonstrations and Ask a Dietitian Session!

Presenters: Anne-Marie Wills, MD, MPH, Mansi Sharma, BS, and Jamie Garry, MS, RD, LDN from the Massachusetts General Hospital Dr. Anne-Marie Wills presented an introduction to the ALS Nutrition App, Mansi Sharma shared 2 cooking…

Open Label Extension Study Results of AMX0035: Implications for People with ALS

In this session, Dr. Neil Thakur and Dr. Kuldip Dave from The ALS Association talk about the implications of additional results from the Open Label Study of the CENTAUR trial for the ALS community. They discuss The ALS…

Long-Term Survival of Participants in the CENTAUR Trial

Dr. Sabrina Paganoni and Dr. Merit Cudkowicz from the Sean M. Healey & AMG Center for ALS at Mass General Hospital present the paper recently published in Muscle and Nerve about the Centaur trial.

I AM ALS presents ALS Signal and PaCTD: Patient Centric Tools

I AM ALS is revolutionizing how to cure fatal diseases -- with our sights set squarely on ALS. One pathway to faster treatments and cures is access. Enter ALS Signal, designed as a user-friendly tool which shares information about…

AMX0035 Results: Implications for People with ALS

In this session, Dr. Neil Thakur and Dr. Kuldip Dave from the ALS Association discuss the implications of the CENTAUR trial for the ALS community.

The views and opinions expressed in this webinar do not necessarily reflect the…

Results of the CENTAUR study: a trial of AMX0035 for people with ALS

Dr. Sabrina Paganoni and Dr. Merit Cudkowicz review the results of the CENTAUR trial evaluating AMX0035 in people with ALS.  

ALS - Biosample Collection Efforts to Accelerate Research: Biofluids, Tissues, Cells and Data

ALS Biorepositories have expanded the opportunities for scientific investigation to ALS researchers worldwide. Many types of Biorepositories and related efforts exist to support research and to aid in therapeutic development. The NEALS…

ALS Clinical Research Learning Institutes: Empowering People with ALS to be Research Ambassadors

In this webinar, we will review the background that led to the creation of ALS Clinical Research Learning Institutes, show what these look like, and detail how patients and families can apply to participate. Several graduates of the…

Update #2: Impact of COVID-19 on ALS clinical research

Hosts: Jinsy A. Andrews, MD, MSc, Columbia University Medical Center and Timothy M. Miller, MD, PhD, Washington University (NEALS Co-Chairs)Panelists: Richard Bedlack, MD, PhD, Duke ALS Clinic; Merit Cudkowicz, MD, Sean M. Healey &…