ALS Clinical Research Learning Institute®

The ALS Clinical Research Learning Institute® (CRLI) is a two-day program that empowers attendees to be strong advocates in the field of ALS by educating them on clinical research and the therapy development process. Certification as an ALS Research Ambassador® provides opportunities to influence and improve the ALS research process.

The ALS-CRLI program was launched in 2011 by Richard Bedlack, MD, PhD (Duke ALS Clinic) and Merit Cudkowicz, MD, MSc (Sean M. Healey & AMG Center for ALS at Mass General Hospital) to facilitate direct interaction between researchers and people living with ALS and their caregivers. Click here to read more about why the program was created.

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Increasing Engagement in ALS Research

Watch a presentation from the 2020 CRLI to learn more about the goals of the program and what it means to become an ALS Research Ambassador ®.

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Become an ALS Research Ambassador®

We will start accepting applications in June for the 2024 ALS Clinical Research Learning Institute®. This in-person class is scheduled for October 2024 in Clearwater, Florida. The open call for applications will be announced at the end of Spring 2024.

Over 500 trained

Meet Our ALS Research Ambassadors

There are over 500 trained ALS Research Ambassadors to date. Watch this webinar to see firsthand how ALS Research Ambassadors are using the knowledge gained from the ALS-CRLI curriculum to improve ALS research. To learn more about the projects the ALS Research Ambassadors are working on, click here to watch a roundtable discussion presented at the 2021 virtual Annual NEALS Meeting. You can also follow the NEALS ALS Research Ambassadors on Facebook.