ALS Clinical Research Learning Institute®

The ALS Clinical Research Learning Institute® (CRLI) is a two-day program that empowers attendees to be strong advocates in the field of ALS by educating them on clinical research and the therapy development process. Certification as an ALS Research Ambassador® provides opportunities to influence and improve the ALS research process.

  • The ALS Clinical Research Learning Institute® was launched in 2011 by Richard Bedlack, MD, PhD (Duke ALS Clinic) and Merit Cudkowicz, MD, MSc (Sean M. Healey & AMG Center for ALS at Mass General Hospital) to empower people living with ALS and their loved ones with essential knowledge about clinical research. Through education and collaboration, the ALS CRLI plays a crucial role in fostering a community of engaged ALS Research Ambassadors dedicated to including lived experience in ALS research. Click here to read more about the ALS CRLI program.
Neals logo
About

Increasing Engagement in ALS Research

Watch a presentation from the 2020 CRLI to learn more about the goals of the program and what it means to become an ALS Research Ambassador ®.

get involved

Become an ALS Research Ambassador®

  • The open call for applications for the next in-person ALS Clinical Research Learning Institute® will be announced in June. This CRLI will be held in October 2024 in Clearwater, Florida. For updates, sign up to receive email announcements from NEALS.

Over 600 trained

Meet Our ALS Research Ambassadors

There are over 600 ALS Research Ambassadors that have completed the ALS CRLI education program. Watch this webinar to see firsthand how ALS Research Ambassadors are using the knowledge gained from the ALS CRLI curriculum to improve ALS research. To learn more about the projects the ALS Research Ambassadors are working on, click here to watch a roundtable discussion presented at the 2021 virtual Annual NEALS Meeting. You can also follow the NEALS ALS Research Ambassadors on Facebook.