PEACe Committee

PEACe Committee Mission Statement

The NEALS Patient Education and Advocacy Committee (PEACe) is dedicated to empowering individuals impacted by ALS through education and collaboration. Our mission is to foster understanding and active participation in ALS research and drug development, ensuring that the patient community's voice is integral to the process. As an ALS patient poignantly stated, "Nothing about us should be done without us." By integrating lived experiences and fostering partnerships between patients, academia, and industry, PEACe aims to drive meaningful involvement and progress in ALS research.

We invite research, industry, and foundation partners to share opportunities with our ALS Research Ambassadors, who are graduates of the ALS Clinical Research Learning Institute (CRLI)® program dedicated to advocating for and contributing to ALS research. Whether you’re seeking patient insights, advisory engagement, or advocacy collaboration, this is a unique opportunity to connect with individuals who are directly impacted by ALS and deeply engaged in the research community.

If you have an opportunity to share and would like to present at an upcoming NEALS PEACe Committee meeting, please complete the Submission Request Form (PDF) and email it to Christina Smith at csmith@neals.org.

Submission request from here.