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Educational Webinars

In partnership with The ALS Association, NEALS offers live webinars for people living with ALS, caregivers, and the broader ALS community.

Webinar topics include updates on clinical trials, best practices for clinical care, and current research efforts in ALS causes and treatments. Our webinars also offer participants the opportunity to ask questions directly of the experts running clinical trials and conducting research activities.
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Trials of the Future: Remote Monitoring Screen Grab

Trials of the Future: Remote Monitoring

Speakers: Dr. Christina Fournier (Emory University), Dr. Andrew Geronimo (Penn State Health), and Dr. Eufrosina Young (SUNY Upstate)

Join us for a webinar on remote monitoring for clinical care moderated by NEALS Co-Chair Dr.…

Update on Healey ALS Platform Trial Regimen E: Trehalose for ALS Screen Grab

Update on Healey ALS Platform Trial Regimen E: Trehalose for ALS

Presenters: Dr. Merit Cudkowicz (Sean M. Healey & AMG Center for ALS at MGH) and Dr. Shafeeq Ladha (Barrow Neurological Institute)The purpose of this webinar is to provide an overview of how SLS-005 (trehalose) may help to slow ALS…

Genes in ALS Screen Grab

Genes in ALS

Dr. Matthew Harms from Columbia University provides an approachable overview of the major genes involved in ALS: what those genes are, how they lead to ALS, and what ideas they are giving scientists for treating all forms of ALS.

Healey ALS Platform Trial Regimen E: A Participant’s Guide Screen Grab

Healey ALS Platform Trial Regimen E: A Participant’s Guide

Presenters: Dr. Merit Cudkowicz (Sean M. Healey & AMG Center for ALS at Mass General Hospital), Dr. Sabrina Paganoni (Sean M. Healey & AMG Center for ALS at Mass General Hospital), and Dr. Shafeeq Ladha (Barrow Neurological…

A Phase 2a Study of TPN-101 in Patients with C9ORF72 ALS/FTD Screen Grab

A Phase 2a Study of TPN-101 in Patients with C9ORF72 ALS/FTD

The purpose of this webinar is to provide an overview of a new clinical study for people living with ALS and a mutation in the C9orf72 gene. We will describe the scientific rationale for the study, the investigational drug (TPN-101),…

The Latest on Expanded Access Protocols in ALS Screen Grab

The Latest on Expanded Access Protocols in ALS

Please join us for a conversation about Expanded Access Protocols (EAPs) in ALS, including recent progress in setting EAPs up alongside clinical trials. This webinar will be moderated by Dr. Jinsy Andrews and will feature Dr. Merit…

An Update on AMX0035 and Design of the Phase 3 PHOENIX Study Screen Grab

An Update on AMX0035 and Design of the Phase 3 PHOENIX Study

Please join Dr. Merit Cudkowicz, MD, MSc (Sean M. Healey & AMG Center for ALS at Mass General Hospital) and Dr. Sabrina Paganoni, MD, PhD (Sean M. Healey & AMG Center for ALS at Mass General Hospital) for a…