Community Education Webinars

In partnership with The ALS Association, NEALS offers a variety of educational webinars for the ALS community.

Webinar topics include updates on clinical trials, best practices for clinical care, and current research efforts in ALS causes and treatments. Our webinars also offer participants the opportunity to ask questions directly of the experts running clinical trials and conducting research activities.

June 12, 2024 / 12:00 pm-1:00 pm

Promising Alternative and Off-Label Treatments for ALS

In this educational webinar, Dr. Richard Bedlack of ALSUntangled will review what he considers to be the most promising alternative and off-label ALS treatments currently. These products, which include vitamins, supplements, and…

May 16, 2024 / 11:00 am-12:00 pm

Access for ALL in ALS (ALL ALS) Consortium

National Institutes of Health (NIH) funded “ALL ALS” consortium is a multi-institutional effort that aims to organize the ALS clinical research landscape in the US. ALL ALS is operating in partnership with several stakeholders…

May 8, 2024 / 4:00 pm-5:00 pm

An Overview of The ALS Better Care Act

Join Dr. Terry Heiman-Patterson, Dr. Kelly Gwathmey and Dr. Sabrina Paganoni, and as they discuss the importance of multidisciplinary care and the role of the ALS Better Care Act to ensure that quality care at Multidisciplinary Centers…

April 25, 2024 / 1:00 pm-2:00 pm

Constipation in People Living with ALS: Does Autonomic Dysfunction Play A Role?

Join us for an insightful session with Dr. Ghazala Hayat, MD, FAAN, FANA, FAANEM, as we delve into the prevalence and challenges of constipation in People Living with ALS. Dr. Hayat will discuss how constipation might be connected to…

March 18, 2024 / 4:30 pm-5:30 pm

The Science Behind ALS Treatments: Riluzole, Radicava, and Relyvrio

Moderated by Dr. Senda Ajroud-Driss, this webinar will review the 3 drugs that are currently FDA-approved in the United States for the general ALS population. Panelists, Dr. Lauren Elman, Dr. John Novak, and Dr. Xiaowei (Bill) Su will…

March 1, 2024

The Benefits of Macronutrients in People Living with ALS: What Should We Eat?

Dr. Ikjae Lee, from the Eleanor and Lou Gehrig ALS Center at Columbia University, will present a summary of literature on the intake of various macronutrients and their impact on the progression of ALS. Building on this foundation, Dr.…

February 13, 2024

Bridging the Gap: The Crucial Role of Collaborative Pre-Clinical Research

Please join us for a conversation with Dr. Christine Vande Velde (Robert Packard Center for ALS Research), Erin Fleming (Project ALS), and Dr. Fernando Vieira (ALS Therapy Development Institute) as we explore the role of the ALS…

January 25, 2024

National ALS Registry: Learn How You Can Join the Fight Against ALS

The National ALS Registry is a multi-faceted research platform. Launched in 2010, the Registry evaluates the public health burden of ALS by determining who has ALS in the United States as well as investigating the causes and…

November 7, 2023

Webinar Utreloxastat (PTC857) and CARDINALS Study Overview

Utreloxastat (PTC857) is an oral small molecule with a unique mechanism of action that targets enzymatic activity in that pathway, and is being studied in the currently enrolling CARDINALS Phase 2 clinical trial to understand its…

June 21, 2023 / 1:00 pm-2:00 pm

Understanding Statistical and Clinical Significance

Presenters: Dr. Jinsy Andrews (Columbia University), Dr. Christina Fournier (Emory University), Dr. Eric Macklin (Mass General Hospital)

What do researchers and scientists mean when they describe a study as “statistically…