Community Education Webinars

Feeding Tube Management and Consideration in People Living with ALS

Join us for an informative session on feeding tube management, presented by Simone Pappalardo, RD, CD, and Emory Finley, MS, RD, CNSC. This webinar will guide attendees through key topics including tube placement and replacement…

Practical Palliative Care Skills for the ALS/MND Clinicians

This session, aimed at multidisciplinary ALS clinicians, focuses on essential palliative care skills that can enhance communication in complex decision-making for ALS/MND patients. You will learn practical techniques to structure…

Stitching Strength: Things I Have Learned About Hope and How I am Trying to Weave These Into My Practice

Hope is more than just an idea—it’s a powerful force that shapes resilience, fosters connection, and drives meaningful change. In this inspiring webinar, Dr. Richard Bedlack from Duke will share insights on the importance of hope and…

Non-Pharmacological Treatments for ALS

Join us for a NEALS NICE Committee webinar on evidence-based respiratory interventions aimed at improving outcomes for individuals with amyotrophic lateral sclerosis (ALS).

Dr. Emily Plowman and Dr. Jason Ackrivo will present the…

Exposomics and Epigenetic ALS insights: How exposures alter ALS risk and progression

Dr. Goutman will discuss the role of environmental exposures on ALS based on studies conducted through the University of Michigan and the Pranger ALS Clinic at Michigan Medicine.

NEALS Year in Review and 2025 Initiatives Overview

Join us for a NEALS webinar featuring an overview of 2024 milestones, key updates, and plans for 2025. Led by NEALS Co-Chairs Dr. Jinsy Andrews and Dr. James Berry, this one-hour session will highlight NEALS’ efforts to advance ALS…

Expanded Access Programs in ALS: What Have We Learned, Where Do We Go from Here?

In this webinar, Drs. Andrews, Babu and Bedlack will explain what Expanded Access Programs (EAPs) are and how they differ from other pathways by which people living with ALS can access experimental products. They will review what we…

Examining Psilocybin for Existential Distress in People with ALS

People with ALS can experience emotional distress and mood-related issues such as depression, a decline in quality of life, and feelings of hopelessness and helplessness, known as existential distress. There are few therapies that…

The Role of AI in ALS

Advanced methods of machine learning have paved the way for a new generation of medical and clinical research. New methods and data resources can offer better diagnostics, new therapeutics, and disease management. Conditions such as ALS…

CNM-Au8 Long-term Data Update:

Emerging Long-Term Evidence of Biomarker Data, Survival and ALS Clinical Worsening Improvements

Merit Cudkowicz, MD, MSC, Director of the Sean M. Healey & AMG Center for ALS, Chair of Neurology at Mass General, Director and…