Community Education Webinars

The Benefits of Macronutrients in People Living with ALS: What Should We Eat?

Dr. Ikjae Lee, from the Eleanor and Lou Gehrig ALS Center at Columbia University, will present a summary of literature on the intake of various macronutrients and their impact on the progression of ALS. Building on this foundation, Dr.…

Bridging the Gap: The Crucial Role of Collaborative Pre-Clinical Research

Please join us for a conversation with Dr. Christine Vande Velde (Robert Packard Center for ALS Research), Erin Fleming (Project ALS), and Dr. Fernando Vieira (ALS Therapy Development Institute) as we explore the role of the ALS…

National ALS Registry: Learn How You Can Join the Fight Against ALS

The National ALS Registry is a multi-faceted research platform. Launched in 2010, the Registry evaluates the public health burden of ALS by determining who has ALS in the United States as well as investigating the causes and…

Webinar Utreloxastat (PTC857) and CARDINALS Study Overview

Utreloxastat (PTC857) is an oral small molecule with a unique mechanism of action that targets enzymatic activity in that pathway, and is being studied in the currently enrolling CARDINALS Phase 2 clinical trial to understand its…

Understanding Statistical and Clinical Significance

Presenters: Dr. Jinsy Andrews (Columbia University), Dr. Christina Fournier (Emory University), Dr. Eric Macklin (Mass General Hospital)

What do researchers and scientists mean when they describe a study as “statistically…

Palliative care for people with ALS

Presenter: Ambereen K. Mehta, MD, MPH, FAAHPM, Johns Hopkins University

In this webinar, we will review what palliative care is and how it can support the quality of life for people living with ALS. We’ll discuss the role of…

Why lumbar puncture and CSF biomarkers are important to ALS therapeutic development

Presenter: Nicholas J. Maragakis, M.D., Johns Hopkins University

The development of biomarkers for understanding ALS progression and for establishing therapeutic target engagement is at a critical stage. As new therapies are…

The ALS Association Webinar: Implications of tofersen for everyone with ALS

The FDA’s recent decision to approve tofersen offers direct benefit to people living with SOD1 ALS, and offers hope to everyone else living with ALS as well. Join the team from The ALS Association to discuss the implications of this…

Tofersen Update

The U.S. Food and Drug Administration (FDA) has granted accelerated approval for tofersen for the treatment of individuals with superoxide dismutase 1 (SOD1) amyotrophic lateral sclerosis (ALS). Join Dr. Timothy Miller for a webinar…

NEALS Webinar: An Update on Tofersen

Please join us for a webinar update on tofersen moderated by NEALS Co-Chair Dr. Jinsy Andrews. Dr. Timothy Miller will provide background on tofersen and updates from the March 22nd FDA Advisory Committee Meeting. Holly Fernandez Lynch,…