Community Education Webinars

In partnership with The ALS Association, NEALS offers a variety of educational webinars for the ALS community.

Webinar topics include updates on clinical trials, best practices for clinical care, and current research efforts in ALS causes and treatments. Our webinars also offer participants the opportunity to ask questions directly of the experts running clinical trials and conducting research activities.

March 27, 2020 / 4:00 pm-5:00 pm

Impact of COVID-19 on ALS clinical research

Hosts: Jinsy A. Andrews, MD, MSc, Columbia University Medical Center and Timothy M. Miller, MD, PhD, Washington University (NEALS Co-Chairs)Panelists: Richard Bedlack, MD, PhD, Duke ALS Clinic; James D. Berry, MD, MPH, Sean M. Healey…

March 10, 2020 / 1:00 pm-2:00 pm

Simplifying the Search: How to Find the Right ALS Clinical Trial for You

Presenter: Timothy Miller, MD, PhD, Washington University in St. LouisThis webinar provides introductory-level instruction on how to search for ALS clinical trials. You will learn what resources to use to find open ALS clinical trials…

March 9, 2020 / 1:00 pm-2:00 pm

Research and Support for Young Caregivers and Families Affected by ALS

Presenter: Melinda Kavanaugh, PhD, MSW, LCSW, University of Wisconsin - MilwaukeeDespite the growing body of research on caregivers in ALS, the most vulnerable and isolated population of caregivers, children and youth caregivers, or…

February 20, 2020 / 1:00 pm-2:00 pm

ROADS to a better ALS outcome measure: the new Rasch-Built Overall ALS Disability Scale (ROADS).

Presenter: Christina Fournier, MD, MSc, Emory UniversityThis webinar will present the rationale for creating a new ALS disability scale, give an overview on the creation and validation of the ROADS, and will discuss advantages of using…

January 16, 2020 / 4:00 pm-5:00 pm

REFINE-ALS: A Much Needed Biomarker Study of Edaravone (Radicava) in ALS

Presenter: James D. Berry, MD, MPH, Massachusetts General HospitalWe will review edaravone evidence, talk about the use of biomarkers to understand the effect of medical therapies, present the design of the REFINE-ALS study, and…

January 9, 2020 / 12:00 pm-1:00 pm

Palliative Care in ALS Clinic

Presenter: Raghav Govindarajan, MD, University of MissouriGiven the complexity of issues accompanying an ALS diagnosis, professional organizations increasingly recommend that ALS patients and their families receive specialist palliative…

December 12, 2019 / 2:00 pm-3:00 pm

ALS Clinical Trial Pipeline Series - Winter 2019

Dr. Jeremy Shefner, Barrow Neurological Institute, will review the ALS clinical trial pipeline and answers questions about the current state of clinical research.

November 22, 2019 / 1:00 pm-2:00 pm

I Just Took a DNA test - Turns Out I Don't Have All the Answers

Are you one of the many pALS who had genetic testing this year? Grab your genetic test report and sit down with Jennifer Roggenbuck, MS, CGC, Genetic Counselor at The Ohio State University Medical Center, to discuss what it all means.…

November 13, 2019 / 1:00 pm-2:00 pm

The Neuropathology of ALS: What can we learn?

Research experiments in ALS and other Neurodegenerative diseases are highly dependent on the study of human nervous system tissues. Brain, spinal cord and other tissues are used for diagnosis as well as for discovery of disease…

October 29, 2019 / 1:00 pm-2:00 pm

Gene-targeted Therapeutics for ALS

Presenter: Timothy Miller, MD, PhD, Washington University in St. LouisNovel gene-targeted therapies are being developed for ALS and other neurodegenerative diseases. We will discuss how these drugs work and some of the research…