Community Education Webinars

In partnership with The ALS Association, NEALS offers a variety of educational webinars for the ALS community.

Webinar topics include updates on clinical trials, best practices for clinical care, and current research efforts in ALS causes and treatments. Our webinars also offer participants the opportunity to ask questions directly of the experts running clinical trials and conducting research activities.

May 17, 2021 / 2:00 pm-3:00 pm

An Update on the CENTAUR Trial: a Trial of AMX0035 in ALS

Presenters: Dr. Sabrina Paganoni and Dr. Merit Cudkowicz from the Sean M. Healey & AMG Center for ALS at Mass General HospitalPlease join us for a conversation about the results of this trial and the next steps for…

May 14, 2021 / 3:30 pm-4:30 pm

ALS Drug Development Webinar Series Part 4: Site Considerations

Drs. Nicholson and Babu will discuss some of the issues faced by sites in a clinical trial including the specific steps and resources a site needs to open and run a clinical trial and an expanded access program.

May 5, 2021 / 1:00 pm-2:00 pm

ALS Drug Development Webinar Series Part 3: Ethical Considerations

Dr. Zachary Simmons from Penn State Health M.S. Hershey Medical Center will discuss the ethical issues surrounding informed consent, placebo controls, placebo-to-drug ratio, “fairness” of inclusion/exclusion criteria…

April 30, 2021 / 3:00 pm-4:00 pm

Maximizing Repositories to Accelerate ALS Research: Biofluids, Tissues, Cells and Data

Presenters: Dr. James Berry (Sean M. Healey & AMG Center for ALS at Mass General Hospital), Dr. Robert Bowser (Barrow Neurological Institute), Dr. Lyle Ostrow (Johns Hopkins University School of Medicine), and Dr. Jeffrey Rothstein…

April 9, 2021 / 12:30 pm-1:30 pm

ALS Drug Development Webinar Series Part 2: Regulatory Considerations

Join us for the second installment of the NEALS webinar series on ALS drug development moderated by Dr. Jinsy Andrews from Columbia University. This series will include talks on the preclinical development of potential therapies, the…

April 7, 2021 / 12:00 pm-1:00 pm

ALS Drug Development Webinar Series Part 1: Scientific Considerations

Announcing a new NEALS webinar series on ALS drug development moderated by Dr. Richard Bedlack from the Duke ALS Clinic. This series will include talks on the preclinical development of potential therapies, the regulatory pathway, the…

March 24, 2021 / 3:00 pm-4:00 pm

Suppressing Neuroinflammation in Neurodegenerative Diseases

Presenters: Stanley H. Appel, MD Houston Methodist Neurological Institute and James D. Berry, MD, MPH Massachusetts General HospitalNeuroinflammation is a major driving force in the pathophysiology of the neurodegenerative diseases ALS…

February 24, 2021 / 12:00 pm-1:00 pm

BrainGate: Brain-Computer Interfaces Toward the Maintenance and Restoration of Communication & Mobil

Intracortical brain-computer interfaces (iBCI) are poised to revolutionize our ability to restore and preserve neurologic function in the setting of disease and injury. The BrainGate research team has been conducting a multi-site pilot…

January 15, 2021 / 4:00 pm-5:00 pm

Expanded Access to Investigational Drugs

Speakers: Dr. Jinsy Andrews (Columbia University Medical Center), Dr. Richard Bedlack (Duke ALS Clinic), Dr. Merit Cudkowicz (Sean M. Healey & AMG Center for ALS at Mass General Hospital), and Dr. Sabrina Paganoni…

December 15, 2020 / 12:00 pm-1:00 pm

Results of the REFALS Study

Dr. Merit Cudkowicz (Sean M. Healey & AMG Center for ALS at Mass General Hospital) will review the results of the REFALS trial evaluating the effect of oral levosimendan (ODM-109) on respiratory function in people with…