Community Education Webinars

In partnership with The ALS Association, NEALS offers a variety of educational webinars for the ALS community.

Webinar topics include updates on clinical trials, best practices for clinical care, and current research efforts in ALS causes and treatments. Our webinars also offer participants the opportunity to ask questions directly of the experts running clinical trials and conducting research activities.

April 7, 2021 / 12:00 pm-1:00 pm

ALS Drug Development Webinar Series Part 1: Scientific Considerations

Announcing a new NEALS webinar series on ALS drug development moderated by Dr. Richard Bedlack from the Duke ALS Clinic. This series will include talks on the preclinical development of potential therapies, the regulatory pathway, the…

March 24, 2021 / 3:00 pm-4:00 pm

Suppressing Neuroinflammation in Neurodegenerative Diseases

Presenters: Stanley H. Appel, MD Houston Methodist Neurological Institute and James D. Berry, MD, MPH Massachusetts General HospitalNeuroinflammation is a major driving force in the pathophysiology of the neurodegenerative diseases ALS…

February 24, 2021 / 12:00 pm-1:00 pm

BrainGate: Brain-Computer Interfaces Toward the Maintenance and Restoration of Communication & Mobil

Intracortical brain-computer interfaces (iBCI) are poised to revolutionize our ability to restore and preserve neurologic function in the setting of disease and injury. The BrainGate research team has been conducting a multi-site pilot…

January 15, 2021 / 4:00 pm-5:00 pm

Expanded Access to Investigational Drugs

Speakers: Dr. Jinsy Andrews (Columbia University Medical Center), Dr. Richard Bedlack (Duke ALS Clinic), Dr. Merit Cudkowicz (Sean M. Healey & AMG Center for ALS at Mass General Hospital), and Dr. Sabrina Paganoni…

December 15, 2020 / 12:00 pm-1:00 pm

Results of the REFALS Study

Dr. Merit Cudkowicz (Sean M. Healey & AMG Center for ALS at Mass General Hospital) will review the results of the REFALS trial evaluating the effect of oral levosimendan (ODM-109) on respiratory function in people with…

November 18, 2020 / 12:00 pm-1:00 pm

Is the Key to Stopping ALS Being Flushed Down Our Toilets?

Presenters: Richard Bedlack, MD, PhD, Duke ALS Clinic and Katharine Nicholson, MD, Sean M. Healey & AMG Center for ALS at MGH The gut microbiome is the family of organisms that live inside our GI tracts. It is very clear…

October 27, 2020 / 12:00 pm-1:00 pm

ALS Nutrition App - Cooking Demonstrations and Ask a Dietitian Session!

Presenters: Anne-Marie Wills, MD, MPH, Mansi Sharma, BS, and Jamie Garry, MS, RD, LDN from the Massachusetts General Hospital Dr. Anne-Marie Wills presented an introduction to the ALS Nutrition App, Mansi Sharma shared 2 cooking…

October 21, 2020 / 3:00 pm-3:30 pm

Open Label Extension Study Results of AMX0035: Implications for People with ALS

In this session, Dr. Neil Thakur and Dr. Kuldip Dave from The ALS Association talk about the implications of additional results from the Open Label Study of the CENTAUR trial for the ALS community. They discuss The ALS…

October 21, 2020 / 2:00 pm-3:00 pm

Long-Term Survival of Participants in the CENTAUR Trial

Dr. Sabrina Paganoni and Dr. Merit Cudkowicz from the Sean M. Healey & AMG Center for ALS at Mass General Hospital present the paper recently published in Muscle and Nerve about the Centaur trial.

September 23, 2020 / 5:00 pm-6:00 pm

I AM ALS presents ALS Signal and PaCTD: Patient Centric Tools

I AM ALS is revolutionizing how to cure fatal diseases -- with our sights set squarely on ALS. One pathway to faster treatments and cures is access. Enter ALS Signal, designed as a user-friendly tool which shares information about…