Community Education Webinars

In partnership with The ALS Association, NEALS offers a variety of educational webinars for the ALS community.

Webinar topics include updates on clinical trials, best practices for clinical care, and current research efforts in ALS causes and treatments. Our webinars also offer participants the opportunity to ask questions directly of the experts running clinical trials and conducting research activities.

November 21, 2014 / 3:00 pm-4:00 pm

ALSA/NEALS PALS Webinar: Mexiletine Study Results Overview

Dr. Michael Weiss (University of Washington) provided an overview of the results of the now completed clinical trial of Mexiletine in patients with sporadic ALS (non-familial).

August 8, 2014 / 4:00 pm-5:00 pm

ALSA/NEALS PALS Webinar: Clinical Trial Pipeline Series - Summer 2014

Dr. Merit Cudkowicz (Massachusetts General Hospital) discusses the ALS clinical trial pipeline and answers questions about the current state of clinical research in ALS and motor neuron disease.Presented on Friday, August 8.

August 6, 2014 / 4:00 pm-5:00 pm

Diaphragm Pacing System™ (DPS) In Participants with Amyotrophic Lateral Sclerosis: An Informational

Dr. Jeremy Shefner and Dr. Jonathan Katz will present the DPS in ALS clinical trial and discuss why the completion of this particular study is so important for the PALS population. They will review the study rationale and background of…

July 16, 2014 / 4:00 pm-5:00 pm

ALSA/NEALS PALS Webinar: Stem Cells

Stem Cells offer tremendous potential, but there are many misconceptions surrounding them. In this program, Dr. James Berry (Massachusetts General Hospital) will review mesenchymal (bone marrow derived) stem cells and discuss…

June 4, 2014 / 4:00 pm-5:00 pm

ALSA/NEALS PALS Webinar: Tele-medicine

In this program, Drs. Michael Pulley (UF Health Jacksonville) and Richard Bedlack (Duke University) will discuss the ways in which they are using a technology called Tele-Medicine to interact with patients with ALS that are…

April 8, 2014 / 4:00 pm-5:00 pm

ALSA/NEALS PALS Webinar: Trial of Resistance and Endurance Exercise in Amyotrophic Lateral Sclerosis

Dr. Nicholas Maragakis (Johns Hopkins University) discusses the rationale behind this clinical study and explains how it helps to develop a larger national study designed to understand how exercise can be combined with other treatments…

April 7, 2014 / 2:00 pm-3:00 pm

ALSA/NEALS PALS Webinar: Biomarkers in ALS

Dr. James Berry and Dr. Nazem Atassi discuss the importance of biomarkers research for studying ALS. Drs. Atassi and Berry highlight ongoing imaging and biofluid studies in ALS, including the Positron Emission Tomography (PET/MRI)…

February 14, 2014 / 2:00 pm-3:00 pm

ALSA/NEALS PALS Webinar: ALS Clinical Trial Pipeline Series - Winter 2014

Dr. Jeremy Shefner (SUNY Upstate Medical Center University) discusses the ALS clinical trial pipeline and answers questions about the current state of clinical research in ALS and motor neuron disease. Presented on February 14, 2014.

February 13, 2014 / 2:00 pm-3:00 pm

Diaphragm Pacing System (DPS) in Participants with ALS - Clinical Trial: An Informational NEALS Webi

Principal Investigators Dr. Jonathan Katz and Dr. Jeremy Shefner explain the rationale and background of this study, describe the patient population being recruited, and discuss what is expected of those who enroll. Presented on…

January 8, 2014 / 2:00 pm-3:00 pm

Expanded Access

Outside of traditional clinical trials, expanded access is the only legal channel for physicians and their patients to explore unapproved medicine. This webinar explained the regulations and history of FDA-authorized expanded access and…