Community Education Webinars

In partnership with The ALS Association, NEALS offers a variety of educational webinars for the ALS community.

Webinar topics include updates on clinical trials, best practices for clinical care, and current research efforts in ALS causes and treatments. Our webinars also offer participants the opportunity to ask questions directly of the experts running clinical trials and conducting research activities.

October 19, 2017 / 1:00 pm-2:00 pm

Power Wheelchairs - The Basics and Beyond

Many people with ALS will use powered mobility during their disease course. There are numerous powered mobility bases and hundreds of components and accessories to select from. Sara Feldman, PT, DPT, ATP, Temple University,…

September 14, 2017 / 12:00 pm-1:00 pm

ALS Research Counts on You - Learn How the National ALS Registry Advances Research

Speakers: Wendy E. Kaye, PhD, McKing Consulting Corporation and Paul Mehta, MD, National ALS Registry The National ALS Registry does more than just count ALS cases. Learn how the Registry promotes and advances ALS…

August 17, 2017 / 4:00 pm-5:00 pm

Advanced Imaging Tools for Accelerating Drug Development in ALS

Dr. Nazem Atassi, Massachusetts General Hospital, will discuss the most recent advancement in imaging tools that allow us to study the causes of ALS in patients, rather than in mice or cells. These novel imaging tools can be used in…

August 10, 2017 / 12:00 pm-1:00 pm

A Phase II Study in ALS of the Effects of Mexiletine on Hyperexcitability of Motor Neurons

Speaker: Michael Weiss, MD, University of Washington Medical CenterOverexcitation (hyperexcitability) of motor neurons appears to be an early process in ALS and could lead to cell death. The objective of this phase II study is to…

August 4, 2017 / 2:30 pm-3:30 pm

Retigabine Clinical Trial Update & Discussion with ALS Patient and Advocate Stephen Winthrop

Dr. Brian Wainger, Massachusetts General Hospital, will provide a brief update on the clinical trial. ALS Patient and Advocate, Stephen Winthrop and Dr. Wainger will discuss the trial from the ALS patient and research…

July 13, 2017 / 1:00 pm-2:00 pm

Exercise and ALS: A Discussion of Research and Practical Recommendations

Speaker: Amy Swartz Ellrodt, PT, DPT, Massachusetts General HospitalMany people with ALS have questions regarding exercise and staying active. Join us for a discussion of the available research regarding Exercise for people with ALS, as…

June 28, 2017 / 12:00 pm-1:00 pm

Results from the Immunosuppression in ALS Trial

Dr. Christina Fournier, Emory University, will review the results from the recently completed Immunosuppression in ALS clinical trial and will discuss the possible roles that the immune system plays in ALS disease progression.

May 22, 2017 / 4:00 pm-5:00 pm

ALS Clinical Trial Pipeline Series - Spring 2017

Dr. Merit Cudkowicz, Chief of Neurology at Massachusetts General Hospital, reviews the ALS clinical trial pipeline and answers questions about the current state of clinical research.

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April 5, 2017 / 1:00 pm-2:00 pm

How Professionals Can Help the Kids in ALS Families

Speaker: Laurie B. Fieldman, LCSW, Les Turner ALS FoundationAll ALS families affect the professionals who work with them, but the most difficult to forget are often the ALS families with children. We want to help them, but the intense…

March 29, 2017 / 2:30 pm-3:30 pm

Clinical Trial of Ezogabine (Retigabine) on Motor Neuron Excitability in ALS

Dr. Brian Wainger, from Massachusetts General Hospital, will discuss the rationale and design of the study, describe the recent Protocol Amendment which impacts the patient population to be recruited and what is entailed by…