Community Education Webinars

In partnership with The ALS Association, NEALS offers a variety of educational webinars for the ALS community.

Webinar topics include updates on clinical trials, best practices for clinical care, and current research efforts in ALS causes and treatments. Our webinars also offer participants the opportunity to ask questions directly of the experts running clinical trials and conducting research activities.

May 18, 2018 / 12:00 pm-1:00 pm

Proactive and Collaborative Consideration of Augmentative Communication Tools and Strategies

Presenter: John M. Costello, MA, CCC-SLP, ALS Augmentative Communication Program, Boston Children's HospitalThis webinar will focus on a variety of communication supports that a person with ALS may consider including early simple…

May 7, 2018 / 4:00 pm-5:00 pm

The Centaur trial: a phase 2 trial of AMX0035 for the treatment of ALS

Dr. Sabrina Paganoni, Massachusetts General Hospital, will discuss CENTAUR, a trial for people with ALS. CENTAUR ("Combination of Phenylbutyrate and Tauroursodeoxycholic Acid") is a Phase 2 trial testing the efficacy and safety of…

April 12, 2018 / 2:00 pm-3:00 pm

ALS Clinical Trial Pipeline Series - Spring 2018

Dr. Terry Heiman-Patterson, Temple University, reviews the ALS clinical trial pipeline and answers questions about the current state of clinical research.

April 3, 2018 / 1:00 pm-2:00 pm

A Randomized Controlled Trial of Resistance and Endurance Exercise in Amyotrophic Lateral Sclerosis

Presented by Drs. Gabrielle Steinhorn and Nicholas J. Maragakis from Johns Hopkins University. Dr. Maragakis reviews the results of the recently completed Trial of Resistance and Endurance Exercise in ALS and Dr. Steinhorn…

March 15, 2018 / 10:00 am-11:00 am

Radicava: A Review of Clinical Trial Data and Drug Considerations

Radicava (edaravone) is a drug that was approved by the U.S. Food and Drug Administration (FDA) to treat people with ALS in May of 2017. Dr. Jonathan Glass, Emory University, opens the presentation with a summary of the clinical trial…

February 8, 2018 / 3:00 pm-4:00 pm

Power Wheelchair: Documentation Requirements

In this presentation, Sherry Kolodziejczak, MS, OTR/L, Crestwood Medical Center, reviews the documentation requirements for power wheelchair evaluation. The Medicare Power Wheelchair form is reviewed in a line-by-line basis teaching the…

January 30, 2018 / 1:00 pm-2:00 pm

Fortitude ALS: A Phase 2 study of CK107 to treat respiratory and motor function in ALS

In this webinar, Jeremy M. Shefner, MD, PhD, Barrow Neurological Institute, reviews the large phase 2 study of CK107 that is now in progress across the US. He discusses the trial design, hopes for the drug, and answers questions from…

January 24, 2018 / 11:00 am-12:00 pm

ALSA-BIO3: Building future success through biomarkers

Speaker: Shafeeq S. Ladha, M.D., Barrow Neurological InstituteALSA-BIO3 is an observational clinical study funded by ALSA and the Fulton Family Foundation. In this study, biofluids as well as clinical and electrophysiologic measures…

January 10, 2018 / 12:00 pm-1:00 pm

The Centaur trial: a phase 2 trial of AMX0035 for the treatment of ALS

Dr. Sabrina Paganoni, Massachusetts General Hospital, reviews CENTAUR, a new trial for people with ALS. CENTAUR ("Combination of Phenylbutyrate and Tauroursodeoxycholic Acid") is a Phase 2 trial that will test the efficacy and safety of…

December 1, 2017 / 1:00 pm-2:00 pm

Actemra Clinical Trial Update

Dr. Shafeeq Ladha from Barrow Neurological Institute will review the clinical trial of Actemra in ALS patients and provide a trial update. He will discuss the rationale for using the drug, the role of inflammation in ALS progression and…