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Community Education Webinars / 2024

In partnership with The ALS Association, NEALS offers live webinars for people with ALS, caregivers, and the broader ALS community.

Topics include updates on clinical trials, best practices for clinical care, and current research efforts in ALS causes and treatments. Our webinars also offer participants the opportunity to ask questions directly of the experts running clinical trials and conducting research activities.
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Examining Psilocybin for Existential Distress in People with ALS Screen Grab

Examining Psilocybin for Existential Distress in People with ALS

People with ALS can experience emotional distress and mood-related issues such as depression, a decline in quality of life, and feelings of hopelessness and helplessness, known as existential distress. There are few therapies that…

The Role of AI in ALS Screen Grab

The Role of AI in ALS

Advanced methods of machine learning have paved the way for a new generation of medical and clinical research. New methods and data resources can offer better diagnostics, new therapeutics, and disease management. Conditions such as ALS…

CNM-Au8 Long-term Data Update: Screen Grab

CNM-Au8 Long-term Data Update:

Emerging Long-Term Evidence of Biomarker Data, Survival and ALS Clinical Worsening Improvements

Merit Cudkowicz, MD, MSC, Director of the Sean M. Healey & AMG Center for ALS, Chair of Neurology at Mass General, Director and…

At the Crossroads: Advanced Respiratory Care in ALS Screen Grab

At the Crossroads: Advanced Respiratory Care in ALS

Join us for the final installment in the "Advanced Respiratory Care in ALS" series as we delve into the complexities of respiratory failure in ALS. This session will focus on crucial end-of-life and quality of life considerations,…

The Role of Biomarkers in ALS Screen Grab

The Role of Biomarkers in ALS

Join us for the NEALS NICE Working Group Webinar on "The Role of Biomarkers in ALS" with James Berry, MD, MPH, and Bob Bowser, PhD, both principal investigators from the Access for All in ALS (ALL ALS) Consortium. They will discuss the…

Optimizing Non-Invasive Ventilation in ALS Screen Grab

Optimizing Non-Invasive Ventilation in ALS

Join us for the third installment of the NEALS Respiratory Care and Ventilation Committee Webinar Series. This session will focus on optimizing non-invasive ventilation (NIV) in ALS, and the contemporary U.S. criteria and typical…

Himalaya Trial Update Webinar Screen Grab

Himalaya Trial Update Webinar

Himalaya Trial Update Webinar

Join us for an update on the Himalaya Trial presented by Nazem Atassi and Merit Cudkowicz. During this webinar, Dr. Atassi and Dr. Cudkowicz will present the results of the Phase 2 trial in ALS and…

Advances in Cough and Secretion Management in ALS Screen Grab

Advances in Cough and Secretion Management in ALS

Advances in Cough and Secretion Management, is the second webinar in the "Advances in Respiratory Care in ALS" (ARC-ALS) 4-Part Webinar Series presented by NEALS and the NEALS Respiratory Care and Ventilation Committee.Join us for the…

Respiratory Care in ALS: Advances in Remote Monitoring in ALS Screen Grab

Respiratory Care in ALS: Advances in Remote Monitoring in ALS

Join us for this inaugural webinar, which marks the beginning of our four-part NEALS Community Education series on advances in respiratory care in ALS. This series, organized by the NEALS Respiratory Care and Ventilation Committee, will…

Promising Alternative and Off-Label Treatments for ALS Screen Grab

Promising Alternative and Off-Label Treatments for ALS

In this educational webinar, Dr. Richard Bedlack of ALSUntangled will review what he considers to be the most promising alternative and off-label ALS treatments currently. These products, which include vitamins, supplements, and…

Access for All in ALS (ALL ALS) Consortium Screen Grab

Access for All in ALS (ALL ALS) Consortium

National Institutes of Health (NIH) funded “ALL ALS” consortium is a multi-institutional effort that aims to organize the ALS clinical research landscape in the US. ALL ALS is operating in partnership with several stakeholders to…

An Overview of The ALS Better Care Act Screen Grab

An Overview of The ALS Better Care Act

Join Dr. Terry Heiman-Patterson, Dr. Kelly Gwathmey and Dr. Sabrina Paganoni, and as they discuss the importance of multidisciplinary care and the role of the ALS Better Care Act to ensure that quality care at Multidisciplinary Centers…

The Science Behind ALS Treatments: Riluzole, Radicava, and Relyvrio Screen Grab

The Science Behind ALS Treatments: Riluzole, Radicava, and Relyvrio

Moderated by Dr. Senda Ajroud-Driss, this webinar will review the 3 drugs that are currently FDA-approved in the United States for the general ALS population. Panelists, Dr. Lauren Elman, Dr. John Novak, and Dr. Xiaowei (Bill) Su will…