The National ALS Registry is a multi-faceted research platform. Launched in 2010, the Registry evaluates the public health burden of ALS by determining who has ALS in the United States as well as investigating the causes and risk factors for this disease. The Registry also connects persons with ALS with clinical trials and epidemiological studies, funds research domestically and globally, and has a biorepository (i.e., National ALS Biorepository) where persons with ALS can donate their blood and saliva for research. This webinar will inform and educate persons with ALS and caregivers the importance of joining and being counted. Persons with ALS are the heart of the National ALS Registry and their data allows researchers to gain insight and advance research on genetics, biomarkers, and environmental exposures.
