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Community Education Webinars / 2016

In partnership with The ALS Association, NEALS offers live webinars for people with ALS, caregivers, and the broader ALS community.

Topics include updates on clinical trials, best practices for clinical care, and current research efforts in ALS causes and treatments. Our webinars also offer participants the opportunity to ask questions directly of the experts running clinical trials and conducting research activities.
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Opportunities and Tips for Raising ALS Awareness & Advocacy Screen Grab

Opportunities and Tips for Raising ALS Awareness & Advocacy

The November 14th webinar featured Mary Luper, a PALS who shared her experiences with ALS advocacy. Mary has learned a lot on the topic of advocacy over the past two years and hopes to share this knowledge with other PALS and CALS…

ALS Clinical Trial Pipeline Series - Fall 2016 Screen Grab

ALS Clinical Trial Pipeline Series - Fall 2016

Merit Cudkowicz, MD, MSc, Massachusetts General Hospital, will review the ALS clinical trial pipeline and answer questions about the current state of clinical research. This webinar will focus on current and upcoming ALS clinical…

C9: From ID (Identification) to Therapy Screen Grab

C9: From ID (Identification) to Therapy

Our expert panelists, Drs. Timothy Miller, Washington University, and Merit Cudkowicz, Massachusetts General Hospital, provide an update on the C9orf72 Natural History Study and discuss therapies in development for C9 patients. Steve…

Ibudilast trials in ALS Screen Grab

Ibudilast trials in ALS

Drs. Benjamin Brooks, Carolinas HealthCare System, and Nazem Atassi, Massachusetts General Hospital, provide an overview on two active, Phase 2 clinical trials of Ibudilast in subjects with ALS and discuss how their study teams are…

ALS Clinical Trial Pipeline Series - Spring 2016 Screen Grab

ALS Clinical Trial Pipeline Series - Spring 2016

Dr. Jeremy Shefner, Barrow Neurological Institute, describes the ALS clinical trial pipeline and answers questions about the current state of clinical research in ALS and motor neuron disease. 

Answer ALS Screen Grab

Answer ALS

Watch this video to learn more about Answer ALS - the single largest coordinated ALS research effort in history! Our expert panelists explain the rationale behind this study, describe the patient population being recruited, and review…

ALSUntangled - Re-Opening the X-Files Screen Grab

ALSUntangled - Re-Opening the X-Files

In this webinar Richard Bedlack, MD, PhD, Duke ALS Clinic, reviews alternative and off-label treatments for ALS. He demonstrates the huge number of these, the reasons patients try them, and some of the risks involved. He also explains…

Updates in Nutritional Interventions for ALS Screen Grab

Updates in Nutritional Interventions for ALS

Dr. Edward Kasarskis from the University of Kentucky joined Dr. Anne-Marie Wills and Registered Dietitian Jane Hubbard from Massachusetts General Hospital on March 4th to lead a discussion onnutritional…

Research Updates - NEALS & MNDA Screen Grab

Research Updates - NEALS & MNDA

Dr. Terry Heiman-Patterson reviews the most significant takeaways from the Annual NEALS Meeting (November 4 - 6, 2015) and the International Symposium on ALS/MND (December 11 - 13, 2015) and discusses what these developments mean for…