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Community Education Webinars

In partnership with The ALS Association, NEALS offers a variety of educational webinars for the ALS community.

Webinar topics include updates on clinical trials, best practices for clinical care, and current research efforts in ALS causes and treatments. Our webinars also offer participants the opportunity to ask questions directly of the experts running clinical trials and conducting research activities.
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Expanded Access

Outside of traditional clinical trials, expanded access is the only legal channel for physicians and their patients to explore unapproved medicine. This webinar explained the regulations and history of FDA-authorized expanded access and…

ALSUntangled: Opening the X-Files of ALS 7-31-13 Screen Grab

ALSUntangled: Opening the X-Files of ALS 7-31-13

Dr. Richard Bedlack (Duke University) discussed ALSUntangled, which investigates alternative and off-label ALS treatments. He highlighted some recently completed reviews, new features, and how PALS can get involved.  Watch it…

TDI-132/Gilenya Informational Webinar 6-26-13 Screen Grab

TDI-132/Gilenya Informational Webinar 6-26-13

Dr. James Berry (Massachusetts General Hospital) provided an overview of the scientific rationale for this exciting \trial as well as discuss the next steps forward. **The TDI-132/Gilenya trial is not funded by The ALS Association.…

Genetic Research in ALS 6-18-13 Screen Grab

Genetic Research in ALS 6-18-13

Robert Brown, DPhil, MD, (University of Massachusetts) highlighted ongoing genetic research in ALS and discussed implications for people living with ALS.

Mexiletine for Patients with Sporadic ALS 1-11-13 Screen Grab

Mexiletine for Patients with Sporadic ALS 1-11-13

Michael Weiss, MD (University of Washington) provided study rationale and background for the clinical trial of Mexiletine in patients with sporadic ALS (non-familial).  

Resistance and Endurance Exercise in ALS Trial Webinar 9-11-12 Screen Grab

Resistance and Endurance Exercise in ALS Trial Webinar 9-11-12

Nicholas Maragakis, MD (Johns Hopkins University) presented rationale for the Exercise Trial in ALS, which is recruiting patients with ALS in Baltimore, Boston, St. Louis, and Charlotte, NC and includes an at-home exercise…