Community Education Webinars

In partnership with The ALS Association, NEALS offers a variety of educational webinars for the ALS community.

Webinar topics include updates on clinical trials, best practices for clinical care, and current research efforts in ALS causes and treatments. Our webinars also offer participants the opportunity to ask questions directly of the experts running clinical trials and conducting research activities.

September 28, 2015 / 1:00 pm-2:00 pm

Compassion Fatigue in ALS

Monday, September 28, 2015 1:00pm - 2:00pm ETCaregivers, patients, and healthcare professionals are invited to join Mass General's Darlene Sawicki, NP, on Monday, September 28th for a webinar focused on compassion fatigue in…

August 6, 2015 / 2:00 pm-3:00 pm

A "Cool" New Duke ALS Research Program Focused on ALS Reversals

Sometimes patients with ALS appear to recover lost functions. These "ALS reversals" may hold important clues to novel mimic syndromes, endogenous mechanisms that can overcome the disease, or even treatments that work. During this…

July 13, 2015 / 2:00 pm-3:00 pm

Assistive Technology Options for Individuals with ALS

The objective of this presentation, provided by Sara Feldman, Physical Therapist at Drexel Neurosciences Institute, is to educate health professionals and PALS on where to begin when addressing high tech assistive technology…

June 15, 2015 / 1:00 pm-2:00 pm

ALS Clinical Trial Pipeline Series - Spring 2015

Dr. Merit Cudkowicz, Mass General Hospital, discusses the ALS clinical trial pipeline and answers questions about the current state of clinical research. This webinar focuses on current and upcoming ALS clinical trials.

May 4, 2015 / 3:00 pm-4:00 pm

Why do people get ALS? Epidemiological studies to find answers

Dr. Björn Oskarsson, UC Davis Medical Center; Dr. Hiroshi Mitsumoto, Columbia University Medical School; and Dr. Kevin Horton, Agency for Toxic Substances and Disease Registry discuss possible environmental risk factors involved in…

April 29, 2015 / 2:00 pm-3:00 pm

Scientific Updates on ALS; NEALS & AAN

Dr. Ghazala Hayat, Saint Louis University School of Medicine, discusses the ALS health care providers and researchers who continue to strive to find the causes and therapies for ALS. The webinar covers the important studies presented at…

April 16, 2015 / 1:30 pm-2:30 pm

Clinical Trial of Ezogabine (Retigabine) on Motor Neuron Excitability in ALS

Dr. Brian Wainger (Massachusetts General Hospital) discusses the rationale and design of the upcoming study, describes the patient population to be recruited and what is entailed by participating in the study.

March 9, 2015 / 3:00 pm-4:00 pm

Clinical Trial Design and the Evaluation of Small Trials

Drs. Jeremy Shefner (Barrow Neurological Institute) and Christopher Coffey (University of Iowa) will discuss how ALS drugs are brought through the pipeline, clinical trial design and issues to consider when interpreting the results of…

February 25, 2015 / 4:00 pm-5:00 pm

Clinical Trial Pipeline Series-Winter 2015

Dr. Jeremy Shefner (Barrow Neurological Institute) discussed the ALS clinical trial pipeline and answered questions about the current state of clinical research in ALS and motor neuron disease.

January 29, 2015 / 4:00 pm-5:00 pm

Diaphragm Pacing System

Principal Investigators Dr. Jonathan Katz (California Pacific Medical Center) and Dr. Jeremy Shefner (Barrow Neurological Institute) will explain the rationale and background of this study, describe the patient population being…