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Community Education Webinars / 2018

In partnership with The ALS Association, NEALS offers live webinars for people with ALS, caregivers, and the broader ALS community.

Topics include updates on clinical trials, best practices for clinical care, and current research efforts in ALS causes and treatments. Our webinars also offer participants the opportunity to ask questions directly of the experts running clinical trials and conducting research activities.
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Update on Stem Cell Trials in ALS: NurOwn and Other Studies Screen Grab

Update on Stem Cell Trials in ALS: NurOwn and Other Studies

Speakers: Merit Cudkowicz, M.D., MSc, Massachusetts General Hospital and Robert H. Brown, Jr. D.Phil., M.D., University of MassachusettsDr. Merit Cudkowicz opens the webinar with an overview of the various stem cell…

Right to Try? Historical, Legal and Ethical Considerations Screen Grab

Right to Try? Historical, Legal and Ethical Considerations

Presenters: James A. Russell, DO, MS, FAAN, Lahey Clinic and Jinsy A. Andrews, MD, MS, FAAN, Columbia University Medical CenterThe Right to Try legislation, passed earlier this year, gives terminally ill patients the right to use…

The Merging of Science and Technology in ALS Research Screen Grab

The Merging of Science and Technology in ALS Research

Presenter: Robert Bowser, PhD, Barrow Neurological InstituteThis webinar discusses various technologic advancements that have generated rapid scientific advancements and complex "Big Datasets" in ALS. It also discusses how the use of…

Cured by Curcumin? Untangling another ALS X-file Screen Grab

Cured by Curcumin? Untangling another ALS X-file

Presenter: Richard Bedlack, MD, PhD, Duke ALS ClinicCurcumin, one of the ingredients in tumeric and curry powder, has several biological effects that could be useful in treating ALS. There are 3 validated "ALS reversals" that…

Treating Respiratory Dysfunction in ALS Screen Grab

Treating Respiratory Dysfunction in ALS

Dr. Christopher Lee, Vanderbilt University Medical Center, reviews options available for treating respiratory dysfunction in ALS, including timing of initiation of respiratory support, different devices to assist breathing and…

Nutrition in ALS: How to EAT MORE! Screen Grab

Nutrition in ALS: How to EAT MORE!

Anne-Marie Wills, MD, MPH, Massachusetts General Hospital, presents the results of the EAT MORE (E-health Application To Monitor Outcomes Remotely) study and Jane Hubbard, MS, RD, LDN, Massachusetts General Hospital, reviews nutrition…

Radicava: A Review of Clinical Trial Data and Drug Considerations Screen Grab

Radicava: A Review of Clinical Trial Data and Drug Considerations

Radicava (edaravone) is a drug that was approved by the U.S. Food and Drug Administration (FDA) to treat people with ALS in May of 2017. Dr. Jonathan Glass, Emory University, opens the presentation with a summary of the clinical trial…

Power Wheelchair: Documentation Requirements Screen Grab

Power Wheelchair: Documentation Requirements

In this presentation, Sherry Kolodziejczak, MS, OTR/L, Crestwood Medical Center, reviews the documentation requirements for power wheelchair evaluation. The Medicare Power Wheelchair form is reviewed in a line-by-line basis teaching the…

ALSA-BIO3: Building future success through biomarkers Screen Grab

ALSA-BIO3: Building future success through biomarkers

Speaker: Shafeeq S. Ladha, M.D., Barrow Neurological InstituteALSA-BIO3 is an observational clinical study funded by ALSA and the Fulton Family Foundation. In this study, biofluids as well as clinical and electrophysiologic measures…