ALS Sample Repository (Living Library)

Study Purpose:

The purpose of this study is to acquire biofluid samples from a diverse cohort of participants to create a living library for researchers across the world to learn more about the biomarkers of the ALS disease state.

Study Status:

Recruiting

Disease:

Amyotrophic Lateral Sclerosis (ALS) , Primary Lateral Sclerosis (PLS) , Hereditary Spastic Paraplegia (HSP) , Healthy Volunteer , Healthy Volunteer with a Family History of ALS

Study Type:

Observational

Type of Intervention:

N/A

Intervention Name:

N/A

Placebo:

N/A

Phase:

N/A

Study Chair(s)/Principal Investigator(s):

James D. Berry, MD, MPH (Massachusetts General Hospital)

Clinicaltrials.gov ID:

Neals Affiliated?

No

Coordinating Center Contact Information

Study Sponsor:

Project ALS, Winthrop Family Scholar in ALS Research and Clinical Care

Participant Duration:

Participants will visit 165 Cambridge St. in Boston, MA 1 to 5 times over the course of two years. Only one visit is required, and additional visits are completely optional. Each visit lasts about 2 hours.

Estimated Enrollment:

500

Estimated Study Start Date:

07 / 14 / 2006

Posting Last Modified Date:

12 / 01 / 2021

Date Study Added to neals.org:

10 / 08 / 2021