Survey of communication methods, interventions, and participation for people with ALS

Study Purpose:

This study involves a one-time survey being conducted to learn more about the communication methods used by people with ALS, how they learn about their options for communication, and how they participate in various communication situations.

Study Status:

Not recruiting

Disease:

Amyotrophic Lateral Sclerosis (ALS) , Familial ALS , Sporadic ALS

Study Type:

Observational

Type of Intervention:

N/A

Intervention Name:

N/A

Placebo:

N/A

Phase:

N/A

Study Chair(s)/Principal Investigator(s):

Betts Peters, MA, CCC-SLP (Oregon Health & Science University) Melanie Fried-Oken, PhD, CCC-SLP (Oregon Health & Science University)

Clinicaltrials.gov ID:

Neals Affiliated?

No

Coordinating Center Contact Information

Study Sponsor:

Participant Duration:

This study involves a one-time survey (available online or by mail) that will take approximately 30-60 minutes.

Estimated Enrollment:

1,000

Estimated Study Start Date:

04 / 26 / 2021

Posting Last Modified Date:

04 / 30 / 2021

Date Study Added to neals.org:

04 / 30 / 2021