The National Amyotrophic Lateral Sclerosis Registry

Study Purpose:

The purpose of this registry is to (A) better describe the incidence and prevalence of Amyotrophic Lateral Sclerosis (ALS) in the United States;(B) examine appropriate factors, such as environmental and occupational, that may be associated with the disease; (C) better outline key demographic factors (such as age, race or ethnicity, gender, and family history of individuals who are diagnosed with the disease) associated with the disease; and (D) better examine the connection between ALS and other motor neuron disorders that can be confused with ALS, misdiagnosed as ALS, and in some cases progress to ALS.

Study Status:

Recruiting

Disease:

Amyotrophic Lateral Sclerosis

Study Type:

Observational [Patient Registry]

Type of Intervention:

N/A

Intervention Name:

N/A

Placebo:

N/A

Phase:

N/A

Study Chair(s)/Principal Investigator(s):

Paul Mehta, MD, Centers for Disease Control and Prevention

Clinicaltrials.gov ID:

NCT01772602

Neals Affiliated?

No

Coordinating Center Contact Information

Study Sponsor:

Centers for Disease Control and Prevention

Estimated Enrollment:

17000

Estimated Study Start Date:

10 / 01 / 2010

Estimated Study Completion Date:

12 / 01 / 2030

Posting Last Modified Date:

05 / 13 / 2022

Date Study Added to neals.org:

01 / 21 / 2013