Determining the Feasibility, Acceptability, and Potential Effectiveness of Sharing Video Recordings of Multidisciplinary ALS Clinics With Patients and Their Caregivers

Study Purpose:

The purpose of the study is to demonstrate the feasibility and acceptability of routine sharing of clinic video recordings with patients and caregivers.

Study Status:

Recruiting

Disease:

Amyotrophic Lateral Sclerosis

Study Type:

Interventional

Type of Intervention:

N/A

Intervention Name:

HealthPAL

Placebo:

Phase:

N/A

Study Chair(s)/Principal Investigator(s):

Jeffrey Cohen, MD, Dartmouth-Hitchcock Medical Center, Paul J Barr, PhD, Dartmouth College

Clinicaltrials.gov ID:

NCT04719403

Neals Affiliated?

No

Coordinating Center Contact Information

Reed WR Bratches, MPH / email hidden; JavaScript is required / 6312591504

Study Sponsor:

Dartmouth-Hitchcock Medical Center

Estimated Enrollment:

58

Estimated Study Start Date:

05 / 12 / 2021

Estimated Study Completion Date:

07 / 01 / 2022

Posting Last Modified Date:

06 / 30 / 2021

Date Study Added to neals.org:

01 / 22 / 2021

Minimum Age:

18 Years

Maximum Age:

N/A

Inclusion Criteria:

- diagnosed and primarily treated for Amyotrophic Lateral Sclerosis (ALS)

- Aged 18 years or greater

- Can communicate in English (verbally, on a computer, or with assistance)

- Have email

- Have internet access

- Willing to have their multidisciplinary clinic visit audio/video recorded for a 3 month period

Exclusion Criteria:

- Those without the capacity to provide consent, either themselves or via proxy

Dartmouth-Hitchcock Medical Center | Recruiting

Reed WR Bratches, MPH / 631-259-1504 / email hidden; JavaScript is required

Susan Tarczewski / 603-646-7066 / email hidden; JavaScript is required

Lebanon, New Hampshire 03766
United States