Study Purpose:
The purpose of the study is to demonstrate the feasibility and acceptability of routine sharing of clinic video recordings with patients and caregivers.Study Status:
Recruiting
Disease:
Amyotrophic Lateral Sclerosis
Study Type:
Interventional
Type of Intervention:
N/A
Intervention Name:
HealthPAL
Placebo:
Phase:
N/A
Study Chair(s)/Principal Investigator(s):
Jeffrey Cohen, MD, Dartmouth-Hitchcock Medical Center, Paul J Barr, PhD, Dartmouth College
Clinicaltrials.gov ID:
Neals Affiliated?
No
Coordinating Center Contact Information
Reed WR Bratches, MPH / email hidden; JavaScript is required / 6312591504
Study Sponsor:
Dartmouth-Hitchcock Medical Center
Estimated Enrollment:
58
Estimated Study Start Date:
05 / 12 / 2021
Estimated Study Completion Date:
07 / 01 / 2022
Posting Last Modified Date:
06 / 30 / 2021
Date Study Added to neals.org:
01 / 22 / 2021
Minimum Age:
18 Years
Maximum Age:
N/A
Inclusion Criteria:- diagnosed and primarily treated for Amyotrophic Lateral Sclerosis (ALS)
- Aged 18 years or greater
- Can communicate in English (verbally, on a computer, or with assistance)
- Have email
- Have internet access
- Willing to have their multidisciplinary clinic visit audio/video recorded for a 3 month period
Exclusion Criteria:
- Those without the capacity to provide consent, either themselves or via proxy
Dartmouth-Hitchcock Medical Center | Recruiting
Reed WR Bratches, MPH / 631-259-1504 / email hidden; JavaScript is required
Susan Tarczewski / 603-646-7066 / email hidden; JavaScript is required
Lebanon, New Hampshire
03766
United States